Hello! I'm Leonie. I’m from Malaysia. I am nineteen this year, and I have Non-Hodgkin’s Lymphoma - a kind of blood cancer. I’m just trying to live my life to the fullest, without any regrets. I'm grateful that I’m still able to wake up to a brand new day and know that I'm still alive.

I refuse to refer to my condition as a disease. I would rather phrase it as a 'series of unfortunate events'.

I learn something new with each passing day. This is the story of my journey, and you're welcome to follow me in every step that I take.

If you would like to learn more about me and my condition, feel free to click on the navigations below. If you have any queries or would just like to say hello, drop me an e-mail at and I'll try to respond as soon as possible!



Monday, 17 October 2011
Bits and Pieces.

Today marks the 100th day since my stem cell transplant.

Even though the side effects from treatment are still causing me discomforts, I guess it'll cause less worry among my friends, readers and anyone who knows me well with an update.

I'll try and keep this short and concise. (It'll be hard though, I have a lot to say; do bear with me.)
  1. Words will never be enough to describe how thankful I am for everyone's generous contributions. (I'll appreciate it a lot if some of you do not use the word 'donations'. It makes me sound like I'm a charity case. Or am I, without me realising it...?) They have definitely helped. I just hope that I can recover soon and have no more relapses so I don't have to burden my parents more; them spending so much money on me when we're not from a well-to-do family. I will always feel guilty for that.

  2. I will definitely thank each and every single person that had contributed personally to those who had informed me of their details or/and their friends' and family members' details. It will take a lot of time though, please be and stay understanding of my condition. One of the main reasons why I haven't been updating is because I get very tired easily nowadays: it's a common side effect from the transplant.

  3. I am recuperating from my stem cell transplant, but I sincerely have no idea whether I'm on the road to recovery or not. The point is:

    Recuperating ≠ Recovering.

    Frankly, who doesn't hope for the latter? I wish I have X-ray vision to see whether there is any growth of anything abnormal or not, so I not only cannot give an answer to every concerned individual who asks, but also to my family and myself. It is worrying whenever I feel a pain here or there, I'll get paranoid about it and worry that my cancer may be back to haunt me. You'll be doing me a huge favour by not asking, because I feel guilty that I cannot produce an answer for you. Many thanks in advance.

  4. I am under quarantine. Strictly no visitors allowed, I'm sorry to say. I do miss my friends a lot and it upsets me whenever I have to reject any of my friends who wants to visit and keep me company(and sane, as well). I'm sorry, and truly am.

  5. Every comment and tag, I had read. I really appreciate them so much; all this support is a good reason for me to stay positive and strong whenever I get discouraged about my condition. I really would like to respond to everyone, but I find it not possible at the moment. But sincerely, thank you, you and you.

  6. As much as they are filled with good intentions, please think before you ask me any questions. Some of them are not only offensive, but also very hurtful. I can't expect everyone to understand, because all of you are healthy people while I'm the one stuck with cancer. From a cancer patient's point of view, I believe that generally, only cancer patients(in my case, blood cancer patients) can really understand how I feel and what I'm coping with; the physical discomforts, the emotional breakdowns, the limitations, the challenge to maintain positive, happy and content just to see the light of another day.

  7. Emotions-wise, I have been feeling like a wreck very often. The smallest of matters can trigger me to cry and actually sob loudly(I don't know what my neighbours will think of me, but what the heck). It's not normal to me; I was very good at holding back my tears during my pre-cancer days. Then, if I ever was caught crying in public(which was super rare) - you'll know that I'm really very upset. Now? The tears come too fast, and too much for my liking. I really hate that I cannot control my emotions as well as before. That definitely adds to my feeling extremely useless. Another reason why I didn't update earlier - I don't want my blog posts to be full of anger and frustration. I don't find entries filled with such negativity of much substance.

  8. Facebook is killing me. I do want to know what my friends are up to. I admit - I badly want to fit in and keep myself updated with their lives. It's like an addiction for me who has to stay at home and get cooped up all day long - with only the television and laptop for company. But, I get jealous of my friends posting photos of them with other friends; living normal lives and especially the girls - looking beautiful and just awesome. I can't force them to post what I want to see and not post what gets me upset, that would just be mean and selfish of me. But I won't deny, it hurts. I look at myself - bald, unhealthy and useless. I don't feel good about myself, not one bit.

  9. I'm getting tired. Really tired. When will freedom arrive? When can I fully recover, and recover the life I'm supposed to have? It's so hard to stay positive as time goes by. Giving up is definitely not an option, but fighting on is just as difficult.
Help me, please.

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